on patient activism

patient activism

Commentary: How Patients Have Transformed A Medical Meeting About Breast Cancer

By speaking up, advocates at the meeting have shifted the direction of breast cancer research. Some are alive, improbably, as a consequence of new treatments enabled and promoted by their advocacy. ...

Is There A Better Place To Decide What’s Right For Patients?

Who should decide when evidence for a drug sufficient to support a patient’s decision to give it a try?...

At Penn State, THON—The World’s Largest Student-Run Charity—Helps Kids with Cancer

Dancing for cancer may seem a crazy idea, paradoxical, and wildly inefficient as a fundraising scheme. But it’s become the thing to do, a good karma-generating phenomenon, and year-round source of pride for the Penn State community...

‘Until 20,’ A Film About A Young Cancer Patient’s End-Of-Life Decisions

This is a true story about a brave young man with osteosarcoma. But it’s more than that. This is a documentary about end-of-life decisions, and how a family copes...

Lip Service To Patients And Caregivers, Or Respect? The Significance Of An FDA Panel’s Review

..as if mothers telling an FDA panel about what’s happening to their kids with Duchenne muscular dystrophy, a disabling condition, is the opposite of science...
Load More